Prevalence and Quality of Life of Leprosy Patients in Mataram City

Authors

  • Sari Putu Suwita Fakultas Kedokteran Universitas Mataram
  • Rika Hastuti Setyorini
  • Eva Triani
  • Dini Suryani
  • Rizka Vidya Lestari

DOI:

https://doi.org/10.29303/jku.v11i2.702

Keywords:

kusta, kualitas hidup, WHOQoL-BREF

Abstract

Background:

Leprosy is a chronic infectious disease caused by the bacterium Mycobacterium leprae that attacks the peripheral nerves and can cause permanent deformity or disability. Leprosy can impact not only patient’s health, but also their quality of life. Currently there is no research on the quality of life of people with leprosy, especially in the city of Mataram.

Method:

This study is a cross-sectional study to determine the prevalence and the quality of life of leprosy patients in 2019-2020. Data on leprosy patients were obtained from all public health center in Mataram. Quality of life was assessed using the WHO questionnaire (WHOQoL-BREF)

Results:

In 2019-2020, there were 25 leprosy patients in the Mataram City area, equivalent to a prevalence of 0.00000504 or 0.5 cases per 10,000 population. 20 respondents were interviewed, with an average quality of life in the physical health domain of 57.32; psychology 59,79; social relations 59,58; and environment 57.81. Based on the quality-of-life category, 11 respondents (55%) belonged to the low score group in the physical and psychological health and 13 respondents (65%) belonged to the low group in the social and environmental relationship domain.

Conclusion:

The prevalence of leprosy in Mataram City in 2019-2020 was lower than the national prevalence in 2017. Some patients have a relatively low quality of life, especially in the domains of physical and psychological health and environmental relationships. Management of leprosy patients needs to pay attention to post-treatment management, especially related to leprosy disability.

References

1. Henry, M. dkk. (2016). Factors Contributing to the Delay in Diagnosis and Continued Transmission of Leprosy in Brazil – An Explorative, Quantitative, Questionnaire Based Study. PLOS Neglected Tropical Disease. DOI:10.1371/journal.pntd.0004542
2. WHO. (2019). Leprosy Fact Sheet. Terakhir diperbarui 10 September 2019. Tersedia di: https://www.who.int/news-room/fact-sheets/detail/leprosy
3. Kementerian Kesehatan RI. (2018). Infodatin Kusta 2018: Hapuskan Stigma dan Diskrimasi terhadap Kusta. Pusat Data dan Informasi Kemenkes RI. Tersedia di: https://pusdatin.kemkes.go.id/article/view/18053000001/infodatin-kusta-2018.html
4. Srinivas, G. dkk. (2019). Risk of disability among adult leprosy cases and determinants of delay in diagnosis in five states of India: A case-control study. PLOS Neglected Tropical Diseases | https://doi.org/10.1371/journal.pntd.0007495 June 27, 201
5. Lockwood, DN. Suneetha, S. (2005). Leprosy: Too complex a disease for a simple elimination paradigm. Bull World Health Organ; 83:230–235.PMID:15798849
6. Menaldi, SL. (2018). Kualitas Hidup Pasien Kusta di Poliklinik Kulit dan Kelamin RS Dr. Cipto Mangunkusumo Jakarta: Kajian terhadap Stigma Sosial. eJKI Vol. 6, No. 3, Desember 2018
7. Making, MI. Aulawi, K. Warsini, S. (2008). Gambaran Hidup Penderita Kusta di Kabupaten Lembata. JIK Vol 03/No.03/September/2008.
8. Dinas Kesehatan Provinsi NTB. (2018). Profil Kesehatan Provinsi Nusa Tenggara Barat Tahun 2018. Tersedia di: https://dinkes.ntbprov.go.id/profil-kesehatan/
9. Muna, IF. Fibriana, AI. (2019). Kualitas Hidup Orang yang Pernah Menderita Kusta. Higeia Journal of Public Health Research and Development. HIGEIA 3 (4) (2019). https://doi.org/10.15294/higeia/v3i4/29492
10. Xiong et al. (2019). Relationship between psychological health and quality of life of people affected by leprosy in the community in Guangdong province, China: a cross-sectional study. BMC Public Health. 19:424. https://doi.org/10.1186/s12889-019-6672-x
11. Silva, APB et al. (2014) Cut-off point for WHOQOL-bref as a measure of quality of life of older adults. Rev Saude Publica. 2014 Jun;48(3):390-7. doi: 10.1590/s0034-8910.2014048004912.
12. Santos, VS, et al. (2015). Functional Activity Limitation and Quality of Life of Leprosy Cases in an Endemic Area in Northeastern Brazil. PLOS Neglected Tropical Diseases. DOI:10.1371/journal.pntd.0003900

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Published

2022-06-30

How to Cite

Putu Suwita, S., Setyorini, R. H., Triani, E., Suryani, D., & Lestari, R. V. (2022). Prevalence and Quality of Life of Leprosy Patients in Mataram City. Jurnal Kedokteran, 11(2), 855–860. https://doi.org/10.29303/jku.v11i2.702

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Section

Research